Walk for kids like Bodhi…
When Bodhi and his twin brother Thomas were born prematurely at 31 weeks, their parents Alicia and Kale embarked on an emotional rollercoaster.
“The boys were born at King Eddie’s, but because Bodhi was born with a heart issue we were transferred to Perth Children’s Hospital, which was really scary and dramatic at the time.”
“Bodhi was diagnosed with a condition called SVT – or supraventricular tachycardia – a heart condition which means he was having episodes of an abnormally fast heart rate.
“Despite the initial shock, the whole experience we had at Perth Children’s Hospital was fantastic. Both babies were transferred so they could be kept together for comfort and support. Kale and I were able to stay in accommodation at the hospital, so could stay side-by-side, near the twins.
“It was really reassuring having the incredible Neonatal Intensive Care Unit (NICU) staff there care for Bodhi and teach us how to manage his condition. Kale and I really bonded with many of the staff and we view them as so much more than health professionals. They were absolutely amazing and saved our baby’s life.”
After a dramatic start to life, Bodhi has been placed on medication to manage his SVT episodes. He will stay on the medication for around nine months before being carefully weaned off it as the heart rate of babies with SVT often naturally slow down as they grow. Bodhi will be closely monitored throughout his treatment so will make regular visits to Perth Children’s Hospital from his home in Geraldton.
By fundraising through the Euroz Big Walk you will help ensure the NICU team have the specialist resources and training they need to care for babies like Bodhi.